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<p><span style="background-color: rgba(255, 255, 255, 0);"><strong><span style="font-family: Gulim,굴림,AppleGothic,sans-serif;"><산정특례 개정 변경안>에 관하여</span></strong></span></p><p><span style="background-color: rgba(255, 255, 255, 0);"><strong></strong></span></p><p><span style="background-color: rgba(255, 255, 255, 0);"><strong><span style="font-family: Gulim,굴림,AppleGothic,sans-serif;">회원 분의 질문을 받고, 이번 19년도 1월 1일자의 변경기준을 찾아 봤습니다</span></strong></span></p><p><span style="background-color: rgba(255, 255, 255, 0);"><span><strong><span style="font-family: Gulim,굴림,AppleGothic,sans-serif;">Full 자료는 첨부자료(자료 내 붉은 글씨 참조)를 참조하시고 </span></strong></span></span></p><p><span style="background-color: rgba(255, 255, 255, 0);"><span><strong><span style="font-family: Gulim,굴림,AppleGothic,sans-serif;">변경내용은 아래 정리해 보겠습니다</span></strong></span></span></p><p><span style="background-color: rgba(255, 255, 255, 0);"><span><br></span></span></p><span style="background-color: rgba(255, 255, 255, 0);"><span><p><span style="background-color: rgba(255, 255, 255, 0);"><strong><span style="color: rgb(70, 65, 217); font-family: Gulim,굴림,AppleGothic,sans-serif;">---변경자료 </span><span style="color: rgb(70, 65, 217); font-family: Gulim,굴림,AppleGothic,sans-serif;">내용일부</span><span style="color: rgb(70, 65, 217); font-family: Gulim,굴림,AppleGothic,sans-serif;"> </span><span style="color: rgb(70, 65, 217); font-family: Gulim,굴림,AppleGothic,sans-serif;">발췌</span><span style="color: rgb(70, 65, 217); font-family: Gulim,굴림,AppleGothic,sans-serif;">---</span></strong></span></p><p><span style="background-color: rgba(255, 255, 255, 0);"><strong><br></strong></span></p><p><span style="background-color: rgba(255, 255, 255, 0);"><strong><span style="color: rgb(70, 65, 217); font-family: Gulim,굴림,AppleGothic,sans-serif;">1. 주요 </span><span style="color: rgb(70, 65, 217); font-family: Gulim,굴림,AppleGothic,sans-serif;">개정내용</span></strong></span></p><p><span style="background-color: rgba(255, 255, 255, 0);"><strong><span style="color: rgb(70, 65, 217); font-family: Gulim,굴림,AppleGothic,sans-serif;"> ○ 희귀난치성질환을 ‘희귀질환’과 ‘중증난치질환’으로 구분 및 목록정비</span></strong></span></p><p><span style="background-color: rgba(255, 255, 255, 0);"><strong><span style="color: rgb(70, 65, 217); font-family: Gulim,굴림,AppleGothic,sans-serif;"> ○ 신규 희귀질환 확대(100개)</span></strong></span></p><p><span style="background-color: rgba(255, 255, 255, 0);"><strong><span style="color: rgb(70, 65, 217); font-family: Gulim,굴림,AppleGothic,sans-serif;"> - 소이증(Q17.2) 등 희귀질환 2개, 극희귀질환 68개, 기타염색체이상질환 30개</span></strong></span></p><p><span style="background-color: rgba(255, 255, 255, 0);"><strong><span style="color: rgb(70, 65, 217); font-family: Gulim,굴림,AppleGothic,sans-serif;"> ○ 산정특례 등록 신청서 변경 등</span></strong></span></p><p><span style="background-color: rgba(255, 255, 255, 0);"><strong><span style="color: rgb(70, 65, 217); font-family: Gulim,굴림,AppleGothic,sans-serif;"> </span></strong></span></p><p><span style="background-color: rgba(255, 255, 255, 0);"><strong><span style="color: rgb(70, 65, 217); font-family: Gulim,굴림,AppleGothic,sans-serif;">2. 시행(예정)일 : 2019. 1. 1.</span></strong></span></p><p><span style="background-color: rgba(255, 255, 255, 0);"><strong><span style="color: rgb(70, 65, 217); font-family: Gulim,굴림,AppleGothic,sans-serif;"> </span></strong></span></p><p><span style="background-color: rgba(255, 255, 255, 0);"><strong><span style="color: rgb(70, 65, 217); font-family: Gulim,굴림,AppleGothic,sans-serif;">3. 제도변경 관련 안내사항</span></strong></span></p><p><span style="background-color: rgba(255, 255, 255, 0);"><strong><span style="color: rgb(70, 65, 217); font-family: Gulim,굴림,AppleGothic,sans-serif;"> ○ 희귀질환과 중증난치질환의 본인부담률 : 10% (변동없음)</span></strong></span></p><p><span style="background-color: rgba(255, 255, 255, 0);"><strong><span style="color: rgb(70, 65, 217); font-family: Gulim,굴림,AppleGothic,sans-serif;"> ○ 희귀질환(별표4) 또는 중증난치질환(별표4의2)에 포함되지 않은 질환</span></strong></span></p><p><span style="background-color: rgba(255, 255, 255, 0);"><strong><span style="color: rgb(70, 65, 217); font-family: Gulim,굴림,AppleGothic,sans-serif;"> - ‘19.1.1. 이전 등록된 경우에는 본인의 적용종료일자까지 산정특례</span><span style="color: rgb(70, 65, 217); font-family: Gulim,굴림,AppleGothic,sans-serif;"> </span><span style="color: rgb(70, 65, 217); font-family: Gulim,굴림,AppleGothic,sans-serif;">적용</span></strong></span></p><p><span style="background-color: rgba(255, 255, 255, 0);"><strong><span style="color: rgb(70, 65, 217); font-family: Gulim,굴림,AppleGothic,sans-serif;"> - 적용시작일 기준, ‘19.1.1. 이후 신규등록 및 재등록 불가</span><span style="color: rgb(70, 65, 217); font-family: Gulim,굴림,AppleGothic,sans-serif;">.</span></strong></span></p><p><span style="background-color: rgba(255, 255, 255, 0);"><span><br></span></span></p><p><span style="font-family: Gulim,굴림,AppleGothic,sans-serif; background-color: rgba(255, 255, 255, 0);">-------------------</span></p><p><span style="background-color: rgba(255, 255, 255, 0);"><br></span></p><p><span style="background-color: rgba(255, 255, 255, 0);"><strong><span style="font-family: Gulim,굴림,AppleGothic,sans-serif;">즉, 정리해보자면,</span></strong></span></p><p><span style="background-color: rgba(255, 255, 255, 0);"><strong><br></strong></span></p><p><span style="background-color: rgba(255, 255, 255, 0);"><strong><span style="font-family: Gulim,굴림,AppleGothic,sans-serif;">오히려 이번 신규희귀질환을 더 추가하는 확대적용하는 변경사안이고</span></strong></span></p><p><span style="background-color: rgba(255, 255, 255, 0);"><strong><span style="font-family: Gulim,굴림,AppleGothic,sans-serif;">기존에 희귀질환으로 통칭했던 것을 희귀질환+중증난치질환으로 분류적용했다는 것입니다.</span></strong></span></p><p><span style="background-color: rgba(255, 255, 255, 0);"><strong><br></strong></span></p><p><span style="background-color: rgba(255, 255, 255, 0);"><strong><span style="font-family: Gulim,굴림,AppleGothic,sans-serif;">희귀질환 표에 해당하지 않은 분들은 재등록 불가하다는 것--> 이 부분이 헷갈리셨던 것 같습니다만</span></strong></span></p><p><span style="background-color: rgba(255, 255, 255, 0);"><strong><br></strong></span></p><p><span style="background-color: rgba(255, 255, 255, 0);"><strong><span style="background-color: rgba(255, 255, 255, 0);"><strong><span style="font-family: Gulim,굴림,AppleGothic,sans-serif;">혹시나 저희 병들이 기준에 탈락하여 표에 없나 하고 처음엔 저도 두근반세근반 하며 찾아봤지만, </span></strong></span></strong></span></p><p><span style="background-color: rgba(255, 255, 255, 0);"><span style="background-color: rgba(255, 255, 255, 0);"><strong><span style="font-family: Gulim,굴림,AppleGothic,sans-serif;">다행히 '척수공동증' 및 '아놀드키아리'은 모두 다 <별표4> 항목에 포함되어 있었습니다 (그림참조)</span></strong></span></span></p><p><span style="background-color: rgba(255, 255, 255, 0);"><span style="background-color: rgba(255, 255, 255, 0);"><strong><span style="font-family: Gulim,굴림,AppleGothic,sans-serif;">물론 검사기준도 동일합니다</span></strong></span></span></p><p><span style="background-color: rgba(255, 255, 255, 0);"><br><strong></strong></span></p><p><span style="background-color: rgba(255, 255, 255, 0);"><strong><span style="font-family: Gulim,굴림,AppleGothic,sans-serif;">고로, MRI상에 완치되셔서 깨끗해지지 않는 이상</span></strong></span></p><p><span style="background-color: rgba(255, 255, 255, 0);"><strong><span style="font-family: Gulim,굴림,AppleGothic,sans-serif;">재등록은 가능합니다</span></strong></span></p><p><span style="background-color: rgba(255, 255, 255, 0);"><br><strong></strong></span></p><p><strong><span style="font-family: Gulim,굴림,AppleGothic,sans-serif;">저는 작년에 재등록했어서 뭐 다시 등록할 필요 없고요</span></strong></p><p><strong><span style="font-family: Gulim,굴림,AppleGothic,sans-serif;">올해이후 재등록해야하실 분들도 크게 걱정 하실 필요 없습니다</span></strong></p><p><strong><br></strong></p><p><strong><span style="font-family: Gulim,굴림,AppleGothic,sans-serif;">그럼 건강 유의하시길 바랍니다</span></strong></p><p><strong><span style="font-family: Gulim,굴림,AppleGothic,sans-serif;">감사합니다</span></strong></p></span><p><br></p></span><p><br></p><p><span style="background-color: rgba(255, 255, 255, 0);"><span><br></span></span></p><p><a href="javascript:checkVirus('grpid%3D1JyQR%26fldid%3DI9Vy%26dataid%3D1%26fileid%3D4%26regdt%3D20190510005758&url=http%3A%2F%2Fcfile289.uf.daum.net%2Fattach%2F999415435CD44B03174C81')"><img src="https://t1.daumcdn.net/daumtop_deco/icon/icon.hanmail.net/editor/p_etc_s.gif" border="0" alt="첨부파일" class="vam"/> 산정특례 변경사항 업데이트자료들 .zip</a></p><p><span style="background-color: rgba(255, 255, 255, 0);"><span><br></span></span></p><p><p><br></p><p style="text-align: center;"><img src="https://t1.daumcdn.net/cfile/cafe/9926324E5CD44B8441" class="txc-image" width="372" style="clear: none; float: none;" border="0" vspace="1" hspace="1" actualwidth="372" exif="{}" data-filename="별표4 중 아놀드키아리 포함.jpg" id="A_9926324E5CD44B84411EA4"/></p><p><br></p><p style="text-align: center;"><img src="https://t1.daumcdn.net/cfile/cafe/9972C34E5CD44B8409" class="txc-image" width="372" style="clear: none; float: none;" border="0" vspace="1" hspace="1" actualwidth="372" exif="{}" data-filename="별표4 중 척수공동증 포함.jpg" id="A_9972C34E5CD44B8409FA10"/></p><p><br></p><p style="text-align: center;"><img src="https://t1.daumcdn.net/cfile/cafe/99236B4E5CD44B8504" class="txc-image" width="1024" style="clear: none; float: none;" border="0" vspace="1" hspace="1" actualwidth="1024" exif="{}" data-filename="필수검사항목 변경전후비교.jpg" id="A_99236B4E5CD44B850446FC"/></p><p><br></p><p><br></p><p><span style="background-color: rgba(255, 255, 255, 0);"><span><br></span></span></p><p><span style="background-color: rgba(255, 255, 255, 0);"><br></span></p>
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좋은정보 다시한번 감사드립니다👏🏻
감사합니다
정보 감사합니다^^
감사합니다
정말 다행입니다!
궁금했는데 감사합니다.
좋은 정보 감사합니다
감사합니다
좋은 정보 감사합니다~
감사합니다
감사합니다
감사합니다
감사합니다~
감사합니다