1주차| 보건,의료 _ 박정윤

[박정윤]

Remarks by Commissioner Stella Kyriakides at the press conference on the European Health Data Space

https://ec.europa.eu/commission/presscorner/detail/fr/speech_22_2790 (8’30’’부터)

<Glossary>

	English	한글	설명
1	EU Digital COVID Certificate	EU 디지털 코로나 증명서	EU가 도입한 백신·검사·회복 증명 통합 디지털 증명서
2	European Health Data Space (EHDS)	유럽 보건의료 데이터 공간	EU 차원의 통합 보건 데이터 공유·활용 체계

The COVID-19 pandemic has shown us the importance of digital tools and how much they improved patient care. 

The EU Digital COVID Certificate is a prime example of this, setting a global standard for safe travel. 

Today, we propose the European Health Data Space—an initiative that will bring us closer to making health data work for patients, people, and innovation. 

Our target is for this space to start functioning by 2025. 

For the first time, we will have a common EU data space connecting all Member States for the benefit of all EU citizens.

The European Health Data Space has two basic aims. 

The first is to enable citizens to share health data, such as medical history, test results, or prescriptions, with hospitals and medical practitioners across Member States. 

Practically, for example, if a person living in Portugal falls ill in Paris, a local doctor will be able to access their medical history in French and prescribe the right medicine. 

There is no need to repeat unnecessary medical exams, as they can be shared digitally across the EU.

Likewise, if a cancer patient has to stay longer than expected away from their country of residence and runs out of the medicine prescribed by their oncologist, they will be able to take their prescription to a local pharmacy and get the vital medication they need.

Those with rare diseases will be able to access doctors in other Member States.

This initiative will help to further pool data, always in a safe way.

Sharing up-to-date, reliable health data is not only key to countering health threats like COVID-19 but is also cost-effective. 

Sharing health data across Member States will save further resources.

The second aim is to revolutionize how we use health data for research, innovation, and policy-making. 

It will create a strong legal framework allowing researchers and industry to access and re-use data. 

This can lead to revolutionary treatments, medical devices, or next-generation antibiotics.

Here, I would like to emphasize two key words: trust and respect.

The framework we have put in place for the European Health Data Space respects citizens' and patients' rights.

For all the above to work, trust is vital. 

Strong privacy and security protections is how we will build this trust.

When it comes to our citizens, they can be confident that their personal health data will be handled with the greatest care, underpinned by strong data protection rules and data security.

The European Health Data Space will give citizens complete control over their data.

They will be able to add information, rectify errors, restrict access and find out which health professionals have accessed their data.[440 words]