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<p>안녕하세요, 희귀·난치성 환자들을 위한 플랫폼 '레어노트' 입니다~! <br><br>소아암·희귀질환지원사업단과 레어노트가 함께 준비하는 소아 뇌전증 세미나 4회차로 <br>'처음에는 낯설어도, 알고 보면 두렵지 않은 <b>롤란딘 뇌전증과 소발작 뇌전증</b>' 이라는 주제의 세미나를 진행합니다. <br><br>1회차: 뇌전증 관리를 위해 우리 아이가 먹는 약에 대해 알고 싶어요 <br><a href="https://youtu.be/dSwmFGWXaDI?si=LS2ltfJIo-mhH9_r" target="_blank" class="ke-link">https://youtu.be/dSwmFGWXaDI?si=LS2ltfJIo-mhH9_r</a><br><br>2회차: 뇌전증과 유전자는 어떤 사이일까? <br><a href="https://youtu.be/Q8dCh16lssU?si=emyzqVs_Bkxnk1uG" target="_blank" class="ke-link">https://youtu.be/Q8dCh16lssU?si=emyzqVs_Bkxnk1uG</a><br><br>3회차: 희귀 유전성 소아뇌전증, 드라베 증후군을 알려주세요 <br><a href="https://youtu.be/QR8mxmjrikI?si=IwWiT9W4RAWxSROR" target="_blank" class="ke-link">https://youtu.be/QR8mxmjrikI?si=IwWiT9W4RAWxSROR</a><br><br></p><hr data-ke-style="style2"><div class="figure-img" data-ke-type="image" data-ke-style="alignCenter" data-ke-mobilestyle="widthOrigin"><img src="https://t1.daumcdn.net/cafeattach/1ND/42d5c16b9e94c53cca2323d54904894244e33f2e" class="txc-image" data-img-src="https://t1.daumcdn.net/cafeattach/1ND/42d5c16b9e94c53cca2323d54904894244e33f2e" data-origin-width="2560" data-origin-height="1440"></div><p> </p><p>🌻주제: <br>처음에는 낯설어도, 알고 보면 두렵지 않은 <b>롤란딕 뇌전증과 소발작 뇌전증</b> <br><br>🍀대상: <br>- 양성 롤란딕 뇌전증 아이가 있는 가족 <br>- 소발작 뇌전증 아이가 있는 가족 <br><br>🌻일시: 6월 24일(월) 오후 4시 ~ 5시(1시간) <br><br>🍀진행 방법: Zoom 웨비나/Youtube 라이브 (사전 참여 신청 필수) <br>*사전 신청을 하시면 세미나 당일에 참여를 위한 링크를 문자로 발송해 드립니다. <br><br>🌻참여 신청: ~6/21(금)까지 아래 링크를 통해 신청해 주세요. <br>* 신청하러 가기: <a href="https://forms.gle/f1n8psjefkCvEWJq5" target="_blank" class="ke-link">https://forms.gle/f1n8psjefkCvEWJq5</a></p><hr data-ke-style="style2"><p>소아 뇌전증과 관련하여 사전 질문, 실시간 질문을 통해 의료진의 답변을 받아볼 수 있는 시간이니 <br>많은 관심과 참여 부탁드립니다~ <br><br>감사합니다.</p>
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